Firefly Sisterhood Privacy Policy

The mission of Firefly Sisterhood is to foster one-to-one connections that are local and personal between women newly diagnosed with breast cancer and those already on the journey.  Our services (“Services”) include:

  • The Firefly Sisterhood One-to-One program which helps women who are newly diagnosed with breast cancer connect with volunteers who    are breast cancer survivors
  • services and tools to enable community based small group meetings
  • educational webinars; and Firefly Sisterhood events
  • Firefly Sisterhood community blog

Firefly Sisterhood is committed to responsible information handling practices. This Privacy Policy (“Policy”) applies to Firefly Sisterhood’s collection and use of personal information and non-personal information that Firefly Sisterhood (“FFS”, “we” “us” or “our”) may obtain when you contact us, visit our website (“Our Site”) or use our services (“Services”).  In this Policy, we sometimes refer to individuals who visit Our Site or use our Services as “you” and “your”.  We refer to newly diagnosed women who participate in our Guide Program as “newly diagnosed sisters or “NDS”, and to breast cancer survivors who serve as guides in the Guide Program as “Guides”.

By visiting Our Site or using our Services, you consent to the information practices described in this Policy.

Information We Collect

We collect personal information to provide our Services as well as some non-personal information about visitors to Our Site.  We use the term “personal information” to mean (1) information that can be used to determine, distinguish or trace an individual’s identity, such as name, e-mail address, address, phone number, social security number, age, and (2) any other information that is linked or linkable to an individual, such as medical and employment information.  We collect personal and non-personal information in the following ways:

Personal information you give us:  We may obtain personal information about you ONLY if you elect to give us that information. We may request personal Information to provide you our Services, enable you to purchase goods or Services available on Our Site, or make a donation online.  Types of personal information we may ask you to provide may include the following:

  • Name
  • Address
  • Zip code
  • Telephone number
  • Occupation
  • E-mail address
  • Credit card number and expiration date (for online purchases or donations)
  • Breast cancer diagnosis

To participate in our One-to-One Program, we ask you to complete an application online which includes some of the above personal information.   If you apply for our One-to-One Program, to help us determine if you can participate and pair you with a NDS or Guide, we may contact you to request additional personal information including but not limited to, confirming your age and that you are over 21, confirming that you have been diagnosed with or are a survivor of breast cancer, stage of breast cancer, marital status, and the number and ages of any children. We may collect feedback, including personal information, from Program participants and others who apply for or use FFS Services to help us improve and tailor our Services  to meet your needs.

Non-personal Information we may collect: We may also collect information or data in a form that does not by itself permit us to associate it with any specific individual, which we treat as “non-personal information” in this Policy.  For example, we may collect information regarding visitors to Our Site to help us provide more useful information to visitors and Guide Program participants, and to understand which parts of Our Site and our Services are of most interest.

Cookies and Other Technologies

When you visit Our Site, we use “cookies” and other technologies to collect data that allows us to understand and improve the usability of Our Site. Cookies are files sent to your browser and stored on your computer.  If you do not want us to send cookies to your browser, you can use your browser options to reject cookies or notify you when a website tries to put cookies into your browser. If you reject cookies, there may be features of Our Site and Services provided on Our Site that you cannot use.

How We Use the Information We Collect

We use personal information collected online to provide and administer our Services, enable purchasing a product from Our Site, and provide information, such as sending marketing communications and newsletters.

Firefly Sisterhood will retain and use your personal information for the purposes for which such personal information is collected.  Firefly Sisterhood will establish minimum and maximum retention periods based upon the type of information collected (i.e., sensitivity), the intended purposes, and as otherwise may be legally required.

Disclosure to Third Parties

Firefly Sisterhood may need to share personal Information with third parties in limited circumstances. For example, we may provide personal information to third parties to perform services such as informing you about upcoming events, third party products or services, volunteer opportunities, fundraising and partner-related product opportunities benefiting Firefly Sisterhood, breast health/breast cancer information or processing credit card payments or maintaining or hosting Our Site or content available on Our Site.

However, such third parties are obligated to maintain the confidentiality of personal information and are not authorized to use personal information for any purpose other than providing those services.

It may be necessary for Firefly Sisterhood to disclose your personal information, if we determine that law, legal process or litigation requires disclosure.  We may disclose your personal information, if we deem it necessary in order to comply with a legal obligation, enforce the Terms of our One-to-One Program, or to protect our rights or the rights of a Program participant.

Security Measures We Use to Protect Personal information

We take your right to privacy and the security of your personal information very seriously.  We take reasonable measures to safeguard and protect your personal information from unauthorized access.  These measures include computer safeguards and secured files and buildings.  Firefly Sisterhood uses Secure Socket Layers (“SSL”) encryption to protect personal information that you transmit to us in the application on our website.  We use reasonable security measures to protect personal and non-personal information that we maintain on servers, including technology, physical, and administrative security measures to limit access and use to authorized persons, and prevent an intruder from obtaining the information.

Regarding Children, Teens and Individuals Under Age 21

Firefly Sisterhood is very concerned about protecting the privacy of children and teens.  We do not intend to collect any personal information from anyone under age 16.  Children and teens age 13 and under are not permitted to use Our Site.  If a parent or guardian learns that a child under 16 has provided Firefly Sisterhood with personal information, the parent or guardian of that child should contact us immediately so that we can delete this information from our files.

Individuals under Age 21 are not eligible to participate in our Guide Program, but individuals between ages 16 and 21 who have been diagnosed with breast cancer are eligible to use our other Services such as webinars.

Your Opt-Out Choice

If you have applied or registered for our One-to-One Program or other Services, Firefly Sisterhood may from time to time send you promotional information about our Services that we think you may find useful.  If you wish to opt-out of receiving promotional mailings or e-mail communications from us, you may do so by clicking on the unsubscribe link in our e-mail communications to you or by e-mailing your request to Firefly Sisterhood at unsubscribe@fireflysisterhood.org.  Please note that opting out of receiving promotional mailings or email will not affect your receipt of service-related, transactional, or legal communication via mail or e-mail in accordance with the Terms.